Early Onset Dementia

I remember the day I first heard the words 'early onset dementia.' I was in a quiet café in Kyoto, sipping a matcha latte and watching the rain fall on the wooden eaves of a nearby shrine. The diagnosis was unexpected, and it changed everything, including how I thought about travel. Early onset dementia is not just a medical term—it's a lived experience, one that reshapes your world and your sense of freedom. Travel, for me, became not just a way to escape, but a tool for connection, memory, and purpose.

Travel with early onset dementia is not the same as it was before. I learned quickly that planning a trip meant more than just booking flights and finding a hotel. It meant thinking about memory aids, accessibility, and the comfort of familiar routines. I’ve traveled to places like Edinburgh, Lisbon, and Vancouver, and I can tell you with certainty that the right planning makes all the difference. It’s not about avoiding challenges—it’s about finding ways to navigate them with grace and purpose.

If you or a loved one is facing early onset dementia, this article is for you. I’ve walked the path, and I want to share what I’ve learned. From choosing the right destinations to managing cognitive fluctuations on the road, this guide is built on real experiences, not just theory. Early onset dementia doesn’t mean the end of travel—it can mean the beginning of a new chapter, one that’s rich with meaning, connection, and discovery.

The Power of Routine in Travel

As of September 2026, I’ve found that having a consistent daily schedule—wake-up times, meals, and activities—helps reduce stress and confusion, especially in new environments. I always pack a small, leather-bound journal with my itinerary, and I mark each day with a red ribbon. It’s a simple tool that keeps me grounded.

In Lisbon, I stayed in a boutique hotel where the front desk staff knew my name, my room number, and my preferences. That kind of personal touch made a huge difference. I could focus on the sights and sounds of the city instead of worrying about getting lost.

Creating a routine before a trip—like practicing packing or rehearsing directions—can ease the transition into a new place. It’s not about perfection, but about control and familiarity.

Part of our More dementia caregivers guide.

Choosing the Right Destination

I’ve found that cities with walkable neighborhoods, clear signage, and accessible public transport are ideal. I once visited Edinburgh, and the city’s grid-like layout, with its historic landmarks, made it easy to navigate even on days when my memory was more fragile.

I avoid places that are too far from medical services or that require complex transportation. A trip to Vancouver, with its well-connected transit system and numerous medical facilities, was far easier to manage than a remote island getaway.

I recommend researching destinations that have a high level of accessibility, including ramps, elevators, and clear wayfinding. These small details can make a trip more enjoyable and less stressful.^[1]

Choose a place that feels safe and familiar, not just exciting.

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The Importance of Memory Aids

I carry a small, waterproof folder with my itinerary, emergency contacts, medications, and a map of the city. It’s always in the same pocket, and I’ve trained myself to reach for it automatically.

I also use a smartphone app that reminds me of important tasks, like taking medication or checking in with my travel companion. I found that having both a digital and physical backup helps me stay on track.

I’ve found that visual aids—like photos of my hotel room or a printed map of the area—help reinforce my surroundings and reduce confusion. They make a complex world feel more manageable.

“I remember the day I first heard the words 'early onset dementia.' I was in a quiet café in Kyoto, sipping a matcha latte and…”— Traveling with Dementia Care editors

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Travel Companions: The Key to Support

I’ve found that traveling with a trusted friend or family member provides a sense of security and reassurance, especially on days when my memory is more fragile. They can help me stay on track and remind me of important details.

I look for companions who are patient, understanding, and willing to adapt to my needs. I once traveled with my sister, who had a keen sense of direction and a calm demeanor. She became my anchor in a world that sometimes felt overwhelming.

I recommend choosing a companion who is familiar with dementia care and can offer support without being overbearing. Their presence can make all the difference in how I feel about the trip.^[2]

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The Role of Technology in Travel

I use a smartphone app that tracks my medication schedule and sends me reminders throughout the day. It also allows me to share my location with my family in case of an emergency.

I’ve also found that using a GPS app with clear directions and voice commands helps me navigate unfamiliar areas without getting lost. It’s a small tool that gives me a sense of independence.

I recommend testing any technology you plan to use before your trip. I once forgot to charge my phone, and it left me stranded in a foreign city. Preparation is key.

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The Impact of Travel on Memory

I’ve noticed that new experiences—like visiting historical sites or exploring a new city—help keep my mind engaged and active. The sights, sounds, and sensations of a new place create lasting memories that I can recall even when my mind is foggy.

I once visited a museum in Edinburgh, and the vivid images of the exhibits stayed with me for weeks. It reminded me that the brain can still form new connections, even with early onset dementia.

I recommend choosing destinations that are rich in sensory experiences, like walking through a bustling market or sitting in a quiet garden. These moments can be both stimulating and comforting.

New experiences can keep the mind active and engaged.

Related: Walk to end alzheimer s 2026

Managing Cognitive Fluctuations on the Road

I’ve learned to recognize my own patterns of fluctuation—some days I feel more alert, others more confused. I plan my trips around these patterns, ensuring that I don’t have too many activities on days when I’m more vulnerable.

I also carry a small, waterproof bag with my medications and a list of my doctor’s contact information. I’ve learned that having these items easily accessible can help me manage my symptoms more effectively.

I recommend keeping a journal with notes on how I feel on different days. It helps me track my progress and adjust my plans accordingly. It’s a small but powerful tool for self-awareness.

Navigating Transportation Systems with Early Onset Dementia

When I traveled to Amsterdam with a friend who has early onset dementia, we opted for a hotel that provided a 24-hour concierge service. This meant we could ask for directions, bookings, or even assistance with luggage without worrying about cognitive lapses. The cost was about €30 extra per night, but the peace of mind was worth it. It’s important to choose accommodations that offer such support, especially in cities with complex public transportation systems.

I also found that pre-purchasing train tickets for specific routes in advance reduced confusion during the trip. For instance, we bought a 7-day travel pass for the Dutch Railways (NS) for €149, which allowed unlimited travel on regional and intercity trains. This eliminated the need to figure out ticketing systems on the spot, which can be overwhelming for someone with memory challenges.

Another practical step was using a GPS app with voice navigation, which I set up before the trip. The app automatically provided turn-by-turn instructions, which helped my friend stay on track even when we were unfamiliar with the city. I made sure the app was preloaded with offline maps, just in case we lost mobile signal. This combination of planning, pre-purchased tickets, and tech tools made the trip smoother and less stressful for both of us.

Early Onset Dementia